Hope Now

This is a song by Addison Road- Hope Now.

Jeremiah 29:11
¹¹ For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future

Listen.

Enjoy..

Around The World..In Minutes

I was checking my email tonight and felt extremely overwhelmed. Not in the tired worn out sense but just an overwhelming sense of responsibility. In a good way of course. My words have made a difference. The thoughts and ramblings in the wee hours of the night have somehow reached all the way around the world and touched someone else's life. I have responded to emails in countries I could never have imagined so many years ago!

The year was 1998 and I was newly diognoised and had this deep need to find anything I could on osteosarcoma. I searched and searched the World Wide Web for any and all that had to do with my type of cancer. Google was not what it is today and trying to find some shred of hope among all the websites of dogs having osteosarcoma was a little discouraging to say the least. I wanted a face to go with a statistic. I wanted someone who had been down the road I was traveling to tell me that everything was going to be ok. I was going to make it. I wasn't just a number and another tragedy of a childhood stolen far too early. Those desires so many years ago has been what started ialwayswantedtoshavemyhead.blogspot.com.  

I have been writing for my blog for over 2 years now and 10,000 views are rapidly approaching. I receive more and more emails from other patients and survivors both young and old; I can’t help but feel so humbled.  I truly feel God has given me a voice or in this case a gift of writing for a purpose.  Cancer can be such a heavy load to carry.  No one can truly understand the weight of the world you feel on your shoulders unless you have been there.  My hope is to help carry that weight so that no one has to feel alone in this battle. Through my words, I have been able to lighten that load. It truly is humbling. I am praying for what God has in store for this blog in the coming year. I want to continue to make a difference.

I vowed many years ago that I would not let this fight be in vein. I would make it count. 

Here is to making it count!

Tiffany

Mama's Boy

Oh my sweet baby boy. He is the light of my life and the source of so much joy and laughter in our house. BUT we are in the pushing boundaries phase right now and he is pushing me right out!!

This tired worn out mama can only hope and pray..(lots of prayers) that everything I am doing now is shaping and molding baby boy to be a strong man of God with true character.

Being a mother to boys takes a certain type of women. I feel I was made to be a mom to boys. I don't know bows or anything about french braids. BUT...

I know football teams.
I catch the winning touchdown
I can wrestle. (and still win)
Don't test me because I can stand my ground with the best of them!
I believe " No blood? You are good!" is a good motto to have.
A little dirt never hurt!
I build forts
Superheros live in our house
I may have jumped on the couch to escape the lava a time or two
I can build a volcano
I am strong

I feel like you have to be strong in order to survive boyhood! Mothers play such an important role with their sons. They teach them so much about life.  The first relationship a boy will ever have with a women is with his mother. That bond has a direct relation to how he treats a women later on in life. "It is far better to raise children then to repair broken men."  I have no idea who that quote is by but it is SO true. I am hoping to raise sons that know how to treat a women. That pattern starts now at a young age. I pray I am planting the seeds in them to be men of courage. I have this scripture up in their bathroom and I hope they remember it always.


"Be on your guard; stand firm in the faith; be men of courage; be strong. Do everything in love."       1 Corinthians 16:13-14


Baby Boy
 

Superheros



Brothers
 



A constant in a world full of variables

 

Is it October already?!

I still am in shock that it has already been a year since my unexpected full knee replacement. September 26th of last year I went into surgery expecting just a "tune up". Recovery time minimal and I would only be down two weeks. When I woke up, they told me I had a FULL knee replacement. My doctor said he was amazed at how I had been walking around. When they opened me up my old replacement literally crumbled off onto the table. CRAZY!! I mean, it was 12 years old but still. So, they did a full blown knee replacement last fall. Fast forward a year later and I am fully recovered and feeling so much better! Life full of work, laundry and cleaning can continue!

I remember how hard it was last year, not only on me, but for my family as well. When I am down things start to fall apart! Not that I am this awesome superwomen and the world would stop if I wasn't in it! BUT, I am MOM. As with any household mom's tend to keep "the world as we know it" going.

So, last year our world was not only stopped but turned upside down and backwards. We had just switched schools with our youngest. Not only was that a transition for him but for us as well. I felt like I dropped him off in August and didn't go back until November; Terrible. A year later he is THRIVING!! God has answered so many of my prayers for him! He is such a bright kid and is almost too aware of his surroundings at times. So with mom being sick and "having a broke leg" he almost suffered along with me. He was 3 and didn't understand why I couldn't make that long trek up the stairs and put him to bed. He didn't want grandma then, he wanted his mama. Broke my heart to hear him scream, "JUST BE MY MOTHER!". Hurts just writing those words even now. Every day he would come home from school and climb onto the couch with me and ask if my leg felt better. Even now there are times when I walk he asks me if my leg is ok. Such a sweet boy who loves his mama!

I know that being a childhood cancer survivor has a price. I was a child going through cancer. That was rough. No child should EVER have to endure what I have lived through. But cancer at any stage in life is tough. I know I didn't have to do chemo or radiation last year but I did have traumatic surgery and issues similar to what I went through at 15. Both were devastating but having been through this as a mother now, I felt the weight of my world crumbling just like my replacement. I wasn't a child just concerned with myself. I was a wife, a mother and a survivor; People depending on me. I was beyond blessed to have family and friends step up to the plate and carry the weight of MY world on their shoulders. I could not have made it through this past year without every single one of you!

With October being Breast Cancer Awareness Month, I wanted to give a shout out to all those who have carried the burden of cancer while having people depend on you. Cancer takes a toll on not only the patient but the family and friends surrounding them. I applaud every caretaker who tirelessly drives to and from treatments or who takes the kids, makes the meals, and does laundry or dishes. To the person who has that shoulder to cry on or makes inappropriate jokes to bring laughter when eyes are too dry to cry. To the friends  and family who show support in all the ups and downs- your constant, in a world full of variables, is invaluable. THANK YOU. It could not be done without you.

A New Zeal For Life

I have never taken vitamins. When I say never I mean I would pump my body full of chemo before taking echinacea drops my mom would try to give me. Terrible and makes no sense, I know. I was a child then and felt like I had no control over anything else. So, I fought tooth and nail to go in the opposite direction. Fast forward over a decade later and I am learning more and more every day how important it is to take care of this tired, worn out body of mine. I am nearing my 30's and understanding how important it is to stay healthy. I have battled side effects from cancer for almost half my life now. The struggle is daily. When I say that I have found something I believe is life changing for me, I mean it.

I started taking Zeal a few weeks ago. I am a big skeptic and have never been one to jump on the bandwagon for every vitamin weight loss or natural energy booster that comes along. It was a slow process for me and I had my doubts. Some friends introduced me to Zeal for Life and said just try it. Try it for a couple days then stop taking it. You will see the difference for yourself. Every day I noticed little changes. As the days went on I began to focus better, have more energy and the every day sluggish feeling was completely gone.

The biggest change came after being on Zeal for over 2 weeks. I began to see improvement in my leg. Now, when I tell you this I say it with every ounce of truth and sincerity in my body. My pain in my leg has DRASTICALLY changed. Those of you who have known me for years know that I have battled leg pain for years. Nothing has helped. I have been on and off of pain meds for well over a decade. I have tried everything under the sun to help just get through the day.  I lowered the amount of medication I have taken to almost nothing now. I am still weening myself down but I have every bit of faith that I will be pain med/Tylenol free eventually!! This is huge for me. I have talked about this battle with my leg in other posts trading my sorrows or you calm my raging sea. It was an every day struggle. Being a mother to boys keeps me busy. It is hard not being able to keep up on most days. Let along try and work on top of being a wife and mother. My mind was telling me one thing but my body prevented me from doing so many things my heart longed to do.  I am not saying that I have been cured. I am not saying that I still might not have days without pain. What I am saying is that I believe 100% in this product. Not from just what others have seen but what I have witnessed myself. If it was just on the fact alone that this product prevented me from having to take pain meds for the rest of my life I would take it. BUT it is so much more then that.

"Zeal Wellness is an all-in-one natural nutritional blend of whole food concentrates. An excellent source of antioxidants and vitamins, it works immediately to neutralize free radicals and strengthen and repair cells. Zeal has well over 100 essential nutrients including nutritional superstars such as rice bran and aloe vera that work synergistically to Enrich, Restore and Protect your body. These extraordinary whole food and plant extracts have been brought together into a unique, all-in-one wellness formula of vital nutrients to support your immune system."

I am very excited to start on this new journey with Zeal and see how it will change the lives of others. From high blood pressure, high cholesterol to even nerve damage. If you would like to know more about this Zeal for life you can go to my website: http://tiffanytaylor.zealforlife.com/the_zeal_wellness_story or contact me through my email at tiffanyjaynes00@aol.com. I would be glad to send you some samples to try for yourself. No pressure, no sales pitch. Just try it. It has changed my life and I know it will change yours!

Childhood Cancer Awareness Month

 

 

 

 

 

Spread the word! September is childhood cancer awareness month! Let's help raise awareness and raise money for research of childhood cancers!

 

 

Listen earnestly...

I saw this on pinterest and thought I would share. I feel like this is so true!

Hugh Herr- Who Says I Can't?

Hugh Herr may be a familar face to some of you. He is a biophysicist at MIT. He was involved in proving Oscar Pistorius "cheetah" legs did not give him an edge in running. My friend Jothy Rosenberg at Who Says I Can't? interviewed him for his new youtube series. Check out Herr's story. He is a double amputee that has not let it stop him from rock climbing! I am not going to lie, I am a little jealous! ;-) Good stuff Jothy!! Keep the stories coming!

Oscar Pistorius.

Wow. I am in awe and amazed at the dedication and journey this man has had to endure to get to be under the lights! What a proud moment. To anyone who has said "I will never be able to do that" he just blew that all out of the water just by showing up. He may have been highlighted these Olympics but soon after the torch goes out for the 2012 London Olympics, the games begin for the 2012 Paralympics. I believe that there are MANY more amazing men and women who have fought just as hard to represent their country. The moto for London 2012 is "Inspire a generation".  I have no doubt that Oscar Pistorius has lived up to that moto and more. Check out more about the sports and at the London 2012 Paralympics. I will be watching Oscar run one more time tomorrow night!

Morgan Rathke

I saw this story online tonight and thought I would share. My own dreams of being an Olympic athlete were crushed when I found out I had cancer so I can only imagine how hard this fight has been.

Read it here The Morgan Rathke Story

She sounds like a fighter! I have been enjoying watching the Olympics with my 4 year old this year. He loves the swimming! My favorite of course has been the track and field. While I always feel a little sad knowing I will never know what that feels like, I can't help but have a sense of pride for my country. It truly is amazing to watch all these athletes who have giving up so much blood, sweat and tears to compete for their country. They are so focused and willing to sacrifice anything and everything in order to win that prize; The Gold Medal. I feel like we all should  try to have that dedication in our lives with our walk with the Lord. That focus and willingness to not be distracted by anything that could stand in the way. I am running for the crown that will never fade and a prize that is far more valuable than gold.  I may not get that gold here on earth but my medal is waiting in heaven. It makes me think of 2 Timothy 4:7 and says, "I have fought the good fight, I have finished the race, I have kept the faith." What distracts you from running your race and keeping the faith?

Sometimes we just need to breathe.

Matthew 11:28-30
Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart ,and you will find rest for your souls. For my yoke is easy and my burden is light.

Some times I just need to be reminded of this. I take on so much of the day to day stresses and forget to stop. breathe. and know that I need to seek rest in Him. I find that when it comes to big things I seem to just run on auto pilot but catch me on an off day and I will fall apart. Crazy for someone who use to thrive on chaos.

When I find myself getting worn out, feeling unappreciated or taken advantage of, I need to remember that I should not be motivated by recognition. I should do the things I do out of love for others. Period. When we free ourselves from the expectations it gives a new meaning to pure love. Love for our family, friends or even those that test our limits. Life goes on. How we react to  this life defines a part of our character.  As a mother, it is my job to teach my boys how to handle themselves. The good. The bad. The ugly. I need to hold the same standard for myself as I expect out of them. I know at times I fail miserably. In those times, I feel I am at my weakest, I am reminded of the above verse in Matthew. Thankful for that! So I will remember to stop.breathe.pray.  God has answered so many of my heartfelt cries. Even the ones I don't dare whisper, He hears and knows even the weary worn out sighs. "Come to me, all  you who are weary and burdened.." He must have known that I needed to be reminded, every now and then, of where a soft place to fall could be found...at His feet.

Livestrong Interviews

This is a great interview of a osteosarcoma survivor!

http://www.youtube.com/watch?v=1K5kjGonnn8

Dyrk Strong.

What a great story of how community pulls together to bring smiles to a child with cancer. Firefighters are amazing in their own right but what all these stations have done for this one boy is pretty cool! AND they get to play with fire and it is ok! Win win. lol

http://www.huffingtonpost.com/2012/06/19/dyrk-burcie-cancer_n_1608237.html?1340107954&icid=maing-grid7%7Cmain5%7Cdl10%7Csec1_lnk3%26pLid%3D171086#s=more233553

Happy Father's Day

                                              

          I know this is a few days late but I guess better late then never right? Hope everyone told their Father how much they mean to them! We are never promised tomorrow, so don't let a day go without letting those in your life know how much they mean to you!

We spent the weekend with the boys and my husband spending quality time together. My husband is gone alot for work so when he is home it is always nice! He is such a great dad to our boys and I am so thankful for him. He came into my life just a few short years after I finished treatment. I was healthy from cancer but was still having to do surgeries on my leg. He never once has cared that I have scars all over my leg or that I am a clumsy mess. He loves me anyway:-) I never thought that I would ever find a man that would love me and all my cancer choas that follows. I especially never thought I would become a mom. I now have both!:-)

All that to say, I am so thankful that my boys have a father that loves their mother unconditionally. With all my dents, dings and imperfections. Thank you. Love you Zac! Happy Father's Day!

I am...

A Mother,Wife,Friend,Sister,Daughter and a Child of God.

I AM A SURVIVOR.

I have survived chemotherapy, 15 surgeries and 3 knee replacements. I survived and mourned the loss of my teenage years gone to a terrible disease that left devestation in its wake. I survived not only losing one friend to cancer but 4 more in the years that followed. I survived broken dreams and really the loss of a life that I would never have but so desprately longed for. I survived the divorce of my parents and the sadness of our family being broken.

 I AM A SURVIVOR.
  sur·vive To carry on despite hardships or trauma; persevere

I feel like that has always been my life story, especially for the past 14 years. I have persevered; Not because I am strong but because I didn't a have choice. I had to be strong. I made a choice on August 24, 1998 that I was not going to let 3 words define what I was going to make of my life. You Have Cancer. No, those 3 words will not define my life. I'M A SURVIVOR. Those 3 words have defined who I am in so many ways. I can probably plug those words into so many aspects of my life and not just those to do with cancer. May 10, 1999 marked day one of surviorship. I have accomplished more in my life then I ever imagine for myself on that day 13 years ago. I am a Mother. That title was taken from me at age 15. I was told I would never be able to have children. A wall I spent 10 years building around my heart came crashing down when I held my son for the first time in 2008. He makes my life so vibrant and full of joy. I could not imagine my life without him. Being a parent now I could not even fathom the thought of him having to go through what I endured as a child.

I started this blog several years ago as a way to share my writing. I have always loved writing. I started in 5th grade writing in a journal and continued through my stuggle with cancer. That journey didn't end when I stopped chemo. This blog has become more then I have ever imagined!! I spent hours upon hours searching the internet when I got sick. Hoping to find others just like me. I never imagined, many years later, I would be a voice to those just starting their own journey. I decided almost 14 years ago that I was going to make all the pain, suffering and sacrifice worth something. I was going to make a difference in lives of others. I feel that I am living that dream. I receive email after email of other patients, both young and old, reaching out to me to find encouragment, advice and just HOPE. I feel blessed and honored to still be here after so many years!! So to all who have followed me on this roller coaster ride, THANK YOU! Thank you for your support, advice, shoulder to cry on and beyond. I am not here today because of what I have done alone. I have had so many people beside me every step of the way. I pray God continues to bless me with MANY more years of life, so that I may bring HOPE to others.

Heaven is for real.

I picked my son up from school, as usual; I was blasted right away with a million why, how come and about 20 questions on various topics. This is normal for us. Tres is such a smart and curious child, a simple answer or I don't know will never do. We were about half way home and he blurts out, "Emily said we will go to Heaven! I want to go to Heaven and be in Heaven with God. How do I do that? Because she said she is going to be in heaven and I want to go there too!" I began to explain that to enter heaven we have to ask Jesus into our heart and live our lives for God. He responds with, "Hey Jesus, will you live in my heart?" "Mama, ok, now I can live in heaven!" What childlike faith! :-) This makes my heart full. As a parent, I know I will make mistakes. I will struggle with knowing that the choices I make now will effect Tres and Zane for the rest of their lives, good or bad. I will always wonder if what I am saying is falling on deaf ears or if deep down they truly are listening to what I am saying. I cannot control or be with my boys 24/7 all the time. I have to have faith and LOTS OF PRAYER over them every day! This world can be so scary when you are a parent. Seems as the years go on, the more I notice such sin, pain and destruction. When they are a baby, you want to protect them from EVERYTHING but as they grow older, the need to protect stays the same and their independence grows. It is a constant battle that I don't think will change for our family any time soon! lol I have learned that instead of focusing on control I need to focus on teaching my boys to listen to their conscience. The voice inside that guides you to choose right from wrong. My prayer is that they learn to listen to that voice and each will develop their own personal relationship with God. This life is full of choices. As much as we would like to think we have control over our lives; we do not. We do however have control over our emotions. We need to respond rather than react and to know the difference. My hope for our boys is to plant seeds deep into their hearts, so that no matter where life takes them the love of God is never far from their reach.

Third times the charm.

I guess I never updated everyone on how things were going! I posted this post and didn't even go into detail as to why I was having alot of those emotions.

To give you a back story I will try and keep the short version! lol

I started having more knee pain. Like alot of pain. More then I usually had on a daily basis. I was told after several tests that I had loosening of my replacement. So back to the OR I went. I was going to have a partial replacement and be back up and running in a few weeks. Well, while under the knife my replacement basically "fell" out and onto the table. So they ended up having to do a FULL knee replacement. That makes 3 for me! 15 surgeries and learning to walk all over again. I had to stay in the hospital for 10 days. Thankful for friends and family to help carry me through this time. I wasn't a child anymore and work, family and financial obligations were looming over me this time around. I had an active 3 year old who would stand at the top of the stairs screaming for me to just come up and lay with him in bed. "JUST BE MY MOTHER!" ouch. This was hard. Probably alot harder this time around. I am on my way to a full recovery and am walking really well now! Thankful for another successful surgery and hoping that the third times the charm!!

What were you doing 13 years ago today?

I know what I was doing. Sitting in a Doctor's chair having my world shattered. You know, just an average case of the Mondays. lol.

Some days it feels like a lifetime ago. Thank you God for answering my prayers. They may not have been the answers I was looking for but always the ones I needed. Thank you for never leaving my side, even when I felt at times I was all alone.

I am alive. I am healthy. I am living my life. I beat CANCER. Check. What's next on my list?

You are Mine.

While praying one day a woman asked, “Who are you, Lord?” He answered, “I Am.”
“But, who is I Am?” she said.
And He replied…
“I Am Love, I Am Peace, I Am Grace, I Am Joy, I Am the Way, the Truth, and the Light…
I Am the Comforter, I Am Strength, I Am Safety, I Am Shelter, I Am Power, I Am the Creator, I Am the Beginning and the End, I Am the Most High.”
With tears in her eyes she looked toward Heaven and said,
“Now I understand. But, Lord, who am I?”
Then God tenderly wiped the tears from her eyes and whispered,
“You are Mine.”

My mom came across this quote and had it framed for me. It sits at my desk. They are such powerful words. If you are ever feeling like you don’t matter, don’t belong or don’t have a purpose, read this. When will you quit running from who you know you were created to be? That quiet voice stirring in your heart is not just a coincidence. That is the Holy Spirit moving and speaking to you. Listen. Follow. Know that you belong to the God of all these things and more.

Can you hear the words comin outta my mouth?!

NOT REALLY.

Well. I go and see an ENT specialist next week. I have been having pretty bad ringing in my ears and high pitch noises are really painful. I have always had a slight ringing in my ears but it seems as the years have gone on the ringing and pain has gotten worse. I was told that taking the Chemotherapy drug Cisplatin could possibly have side effects including some hearing loss. I have had hearing tests in the past but nothing was found wrong at that point. It has been years since my last one and I really feel that things have slowly gotten worse since then. I feel like my ears are stopped up like a cold,ringing in the ears, painful to hear loud sudden sounds, high pitch noises hurt. I am not sure what the problem is but I figure it is time I get my ears looked at.

Please keep me in your prayers. I am confident that everything will be ok but it does make me a little nervous not really knowing. I have been doing a little research online since making the appointment and found a good article on hearing loss from cisplatin. Osteosarcoma survivors have a higher risk of getting that side effect because of the dosage.

http://www.sciencedaily.com/releases/2005/12/051212164355.htm

Could I really have a side effect so many years post treatment? Have I always had something wrong and just didn't notice till it became my normal? Any other survivors having to deal with these types of side effects?

Until then, I wait...

Osteosarcoma

I was recently doing a google search for Osteosarcoma. I found this site and a great article with some really good information on everything Osteosarcoma.
just thought I would pass it along!
http://www.cancer.org/acs/groups/cid/documents/webcontent/003129-pdf.pdf

You Steady My Heart

I love Kari Jobe! Her songs played in the hospital and at home alot these past months. This song says alot of how I have felt many times. Such truth in the words.

Walk a mile in these shoes..I bet you trip.

I have been so touched by the recent outpouring of emails from fellow Osteosarcoma survivors, caregivers or those that are still in treatment. When I started this blog a few years ago it really was just my way of dealing with survivorship. I never realized the impact it might have on others in various stages of their own journey.

When I was 15 and newly in treatment I spent hours, and when I say hours I mean HOURS, on the internet searching for anything and everything about Osteosarcoma. I wanted to chat with people who have had it, were over it, and beyond! I had the hardest time connecting and searching for information about my recent new found “normal”. I needed to know that I was going to be ok, somehow. The internet was still slow and people were still getting use to the idea of putting your personal life out there.  Amazing how a decade changes things. So much information is now available. CSN was just getting started and hardly anyone used it back then. Now so many people are connected through such a wonderful site!

I am coming up on 13 years cancer free, May 10^th to be exact.  I love that day. I don’t really do much different anymore but I know inside I just feel different.  It marks milestones that no one else can comprehend unless you have walked a mile in my shoes. Let me tell you, to walk a mile in these shoes TAKES FOREVER and I may or may not trip a few times in the process! J Ok, Ok. I WILL most definitely trip a time or two. But I do walk, and I do finish.  That by itself is an accomplishment and something worth celebrating! My friends and family have two full years to get the planning done on my BIG 15 year party…(*cough* just a hint..)

All that to say, those of you who have stumbled upon my blog by accident or on purpose, THANK YOU.  If you have walked a mile in my shoes, Osteosarcoma is no easy road. I have been down it and back. I have had flats, detours, rough rides and long breaks. I AM HERE. I AM HEALTHY. I HAVE SURVIVED.  Take heart. You will have one heck of a fight but life is too sweet not to give it a try! My husband and two boys seem pretty glad I did! J

If you are searching for more survivors that have walked a mile in your shoes check out http://csn.cancer.org/. It was such a  help to me over the years! One amazing survivor of Osteosarcoma has SEVERAL shoes to fill but is still going strong, Jothy Rosenberg! Check his website out Who says I can't? He has such an inspiring book out that I think everyone should read, cancer or not! Damian Buchman is another fellow survivor that I have just recently met and he is doing wonderful things for his community despite his limb salvage surgery. Check out what he is up to at the Ability Center.

Pray.

I have been on facebook these past several days receiving updates, on a friend of my cousin, who has a two year old little girl and just found out she has a brain tumor and IT IS CANCER.

Those 3 little words hold so much power.

They are the 3 words that will change your life forever.

This breaks my heart. I know the road ahead for this precious family. They have other children and I know the struggles these kids are going to have to deal with.  It is a long hard road. I would not wish this on anyone. I started writing and this prayer came out. I pray this over this family and in full confidence that God is right along side this young baby girl and will never forsake her!!

I pray for comfort, strength and WISDOM! Wisdom to know what decisions to make and the strength to stand firm in those decisions! I pray for comfort for this little girl! Two years old and fighting to survive. I pray comfort for her parents and her siblings. I pray dear God you knit them together and make them a strong, tight family unit to fight this incredible fight ahead of them! God, I know that you will never forsake them in their weakness and remind them who you are. You are HEALER. Above all else you are the Lord God Almighty and your will be done. Take what satan has intended for death, destruction, pain and suffering and turn it into glory to your name! I pray a hedge of protection over this dear family. I pray for laughter. I pray for JOY in the midst of sorrow for everyone in this family. Finding those little moments of happiness and taking time to enjoy the little achievements for everyone. I pray for both the parents. I pray they push into each other through these trying times. Having a sick child brings so much stress and I pray for strength for them both to handle any stress or strain that comes their way! "I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." So I pray for peace for this family while they travel this road. In your name…Amen